About the organisation
We are the foremost leading charity for physical health (hypermobility Ehlers-Danlos syndromes and hypermobility Spectrum Disorders plus associated conditions) and neurodivergence (Autism ADHD Dyspraxia and more). Our vision is a world where neurodivergent individuals with symptomatic hypermobility and associated conditions are understood, supported, and empowered to thrive. Our mission is to support, advocate for, and transform the lives of our beneficiaries by providing resources, fostering community inclusion and promoting awarness . We have an extremely good reputation globally but we are user led and all voluntary. We beleive this is needed and why so many believe in us. We have won many awards for our unique advocacy yet it is evidenced based with our Patron leading the neuroscience on this .
About the role
Oversee all aspects of the charity’s financial operations, including budgeting, accounting, and financial reporting.
Ensure that the charity adheres to all legal financial obligations and maintains accurate financial records.
Monitor the charity’s cash flow, income, and expenditure to safeguard its financial stability and sustainability.
Regularly review and update financial policies and procedures in line with best practices.
Financial Reporting
Present regular financial reports to the Board, providing analysis and insights to facilitate decision-making.
Prepare and present the annual financial statements and coordinate with auditors for annual audits.
Ensure financial reports meet the standards required by relevant regulatory bodies (e.g., Charity Commission, Auditors, HMRC).
Budgeting and Financial Planning
Lead the preparation of the charity’s annual budget and financial forecasts.
Collaborate with other Board members to guide the strategic planning process and ensure alignment with financial resources.
Identify and manage financial risks, recommending strategies to mitigate potential challenges.
Governance and Compliance
Ensure compliance with all relevant financial legislation and charity law, including VAT and tax requirements.
Serve as the Board's lead on compliance matters related to finance, and maintain a strong understanding of regulatory changes affecting the charity sector.
Work with the charity’s finance team (if applicable) to maintain effective internal controls and safeguarding measures.
Supporting Fundraising and Development Efforts
Work with the Board and fundraising teams to develop financially sound strategies to support growth and stability.
Assess the financial implications of new projects, partnerships, and fundraising initiatives.
Works collaboratively with volunteers and stakeholders.
Our ideal candidate
Skills and Qualifications
- Experience: Proven experience in a senior finance role, ideally within the charity sector or in a similar nonprofit environment.
- Financial Expertise: Strong understanding of charity finance, accounting, and reporting requirements, including charity law and SORP guidelines.
- Analytical Skills: Ability to analyze complex financial information and communicate it effectively to non-finance Board members.
- Ethics and Integrity: A commitment to transparency, ethical practice, and upholding the values of SEDSConnective.
Personal Qualities
- Strategic Thinker: Capacity to think creatively and strategically to contribute to the charity’s long-term goals.
- Collaborative Leader: Excellent communication skills with the ability to work collaboratively with Board members, staff, and external stakeholders.
- Commitment: Dedicated to advancing the mission of SEDSConnective and supporting its growth and financial sustainability.
What’s in it for you
We are breaking ground in this area and to keep up with demand in our voluntary charity we need your expertise and passion to continue this lifesaving charity . We are a unique award winning charity helping save lives. We are all voluntary but we are growing. Our volunteers and totally in step with a voice on our vision. We are looking for someone who has a passion for equality, equity in life opportunities and can use their skills in finance to help us continue as an officer of the Charity.
Apply for the role
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