About the organisation
Founded in 1991, the CGD Society has spent over 30 years supporting individuals and families affected by chronic granulomatous disorder, a life-limiting and life-threatening genetic condition. In this time, we have provided direct financial support to help those affected work their way through the health system, founded and continue to fund a dedicated clinical nursing service in partnership with Great Ormond Street Hospital, and facilitated years of medical research into treatments. We also founded the Jeans for Genes Campaign, a national fundraising event that has raised over £45 million for the genetic disorder community and which in 2025 celebrated its 30th anniversary.
Our Mission
To be the leading source of information and support for families and individuals affected by CGD in the UK and around the world, by sharing the learnings and expertise from patients and medical professionals who treat them.
Our Vision
Our vision is to enable families and individuals affected by CGD to live life to the full.
We will achieve this by:
About the role
Trustee (Treasurer)
Role type: Trustee term: Voluntary. Three years, with maximum of three terms. Work expectations: 1-2 hours per week. Working location: Remote. We aim to host one in-person
We are now seeking an experienced accountant or finance manager to join our organisation as a trustee and serve as our Treasurer. This role will give you great exposure to how charities function at a board level and how directors provide oversight to the organisation’s finances. This role is very suitable for both first-time and experienced trustees, and our current staff and board are very happy to guide you through the board dynamics. Financial oversight is the responsibility of the whole board, not just the Treasurer, so you will have a lot of support from our Executive Director, trustees, and the Chair of the Board, who was our previous Treasurer. We also contract an external firm of accountants to cover our monthly payroll and the end of year accounts preparation, who you will work closely with.
About the role, what you will do:
- Oversee our financial governance and compliance.
- Prepare and present our quarterly management accounts.
- Support on the completion of our statutory accounts and annual report.
- Organise our budget and business planning procedures.
- Engage with overall governance of the charity as a valued member of the trustee board.
What will be expected of you:
- Attend our virtual board meetings, currently on a weekday evening six times a year.
- Co-chair the Governance & Finance subcommittee of the board with our Secretary.
- Support our staff on financial matters, average about 1-2 hours each week.
Why do we ask for these things? We are a small charity with only a few staff and a handful of volunteers, as such we need someone who can pick up the financial administration of the charity with minimal supervision. For example, when preparing the quarterly accounts, we need someone who will be able to spot when an accrual or prepayment is required, rather than being told to look for it.
Our ideal candidate
About you, what we are looking for:
- A background in accounting or financial management.
- Ability to explain financial matters to non-financial stakeholders.
- Desirably, a recognised accountancy qualification (e.g. AAT, ACCA, CIMA).
What’s in it for you
This role will not only give you great exposure to how charities function at a board level and how directors provide oversight to the organisation’s finances, it will provide the oppurtunity to make a positive impact to our CGD families in the UK and around the word. This role is very suitable for both first-time and experienced trustees, and our current staff and board are very happy to guide you through the board dynamics.
Apply for the role
Please provide a short cover note setting out your motivations for volunteering for the organisation, any relevant skills/experience and why you think you might be a suitable candidate.
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